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- HIE of One is a free software project developing tools for patients to manage their own health records. HIE stands for Health Information Exchange, an electronic network for sharing health information across different organizations, hospitals, providers, and patients. This is one of a growing number of tools for encrypted data exchange within the health care sphere. Journalist Doc Searls claims that a major structural problem with health care in the United States is that it is paid for by insurance companies and not patients, thus robbing patients of the power they would normally have as the customer in a free market. Searls writes that "[t]he best approach I have seen so far to this challenge is HIE of One, a project of two MDs, Adrian Gropper and Michael Chen." He notes that HIE of One provides a patient-centered toolkit built around open source software and open data exchange standards. Prof. Phillip Windley, former Chief Information Officer of the State of Utah, has noted the positive impact that HIE of One could have on privacy and consent. A proposal for using HIE of One in conjunction with blockchain technology was reviewed by the US Office of the National Coordinator (ONC), winning an award from the ONC on the basis that the proposal was innovative, viable, and significant. The project rests on the premise that patients should authorize the sharing of their own health data, instead of leaving these decisions up to hospitals and other healthcare providers who offer generic and opaque disclosure forms. The elements of sharing health data can be broken down into storage, authorization, and transmission. HIE of One has decentralization solutions for each of these elements, and provides an open platform on which far more capabilities can be built, such as decision support, analytics, public health efforts, and coordinated health care. (en)
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