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About: International FOP Association     Goto   Sponge   NotDistinct   Permalink

An Entity of Type : yago:WikicatDisabilityOrganizations, within Data Space : dbpedia.org associated with source document(s)

Type: Thingschema:Organizationdul:Agentdul:SocialPersonagentwikidata:Q24229398Organizationyago:WikicatCharitableOrganizationsyago:Abstraction100002137yago:Charity108406619yago:FinancialInstitution108054721yago:Foundation108406486yago:Group100031264yago:Institution108053576yago:Organization108008335yago:WikicatHealthCharitiesyago:YagoLegalActoryago:YagoLegalActorGeoyago:YagoPermanentlyLocatedEntityorganisationyago:SocialGroup107950920yago:WikicatDisabilityOrganizations New Facet based on Instances of this Class

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a US-based 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). IFOPA's mission is to fund research to find a cure for FOP while supporting, connecting, and advocating for individuals with FOP and their families, and raising awareness worldwide. IFOPA is governed by a volunteer board of directors which may range in number from 9 to 15, at least one of whom must have FOP. The association's location is 1520 Clay St., Suite H2, North Kansas City, MO, 64116, part of the Kansas City, Missouri metropolitan area.