About: Dynamic consent

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Dynamic consent is an approach to informed consent that enables on-going engagement and communication between individuals and the users and custodians of their data. It is designed to address the many issues that are raised by the use of digital technologies in research and clinical care that enable the wide-scale use, linkage, analysis and integration of diverse datasets and the use of AI and big data analyses. These issues include how to obtain informed consent in a rapidly-changing environment; growing expectations that people should know how their data is being used; increased legal and regulatory requirements for the management of secondary use of data in biobanks and other medical research infrastructure. The concept has been developed in 2007 by an Italian group who introduced the

Attributes	Values
rdfs:label	Dynamic consent (en)
rdfs:comment	Dynamic consent is an approach to informed consent that enables on-going engagement and communication between individuals and the users and custodians of their data. It is designed to address the many issues that are raised by the use of digital technologies in research and clinical care that enable the wide-scale use, linkage, analysis and integration of diverse datasets and the use of AI and big data analyses. These issues include how to obtain informed consent in a rapidly-changing environment; growing expectations that people should know how their data is being used; increased legal and regulatory requirements for the management of secondary use of data in biobanks and other medical research infrastructure. The concept has been developed in 2007 by an Italian group who introduced the (en)
dcterms:subject	Consent Concepts in ethics Data publishing
Wikipage page ID	50570701 (xsd:integer)
Wikipage revision ID	1124912494 (xsd:integer)
Link from a Wikipage to another Wikipage	Privacy University of Manchester University of Oxford University of Warwick Declaration of Helsinki Informed consent Internet Electronic health records Personal information QinetiQ Genetic Alliance NHS Consent Confidentiality Anonymity London School of Economics Marketing Data mining Data processing Data set Data sovereignty Warwick Manufacturing Group Care.data Biobanks Patient-reported outcome Research and development HP EPSRC Concepts in ethics Data publishing Information privacy Algorithms Technology Strategy Board Research participant ESRC Information communication technology
Link from a Wikipage to an external page	http://www.ox.ac.uk/ https://www.gov.uk/data-protection/the-data-protection-act
sameAs	Dynamic consent Dynamic consent Dynamic consent
dbp:wikiPageUsesTemplate	dbt:Essay dbt:Reflist
has abstract	Dynamic consent is an approach to informed consent that enables on-going engagement and communication between individuals and the users and custodians of their data. It is designed to address the many issues that are raised by the use of digital technologies in research and clinical care that enable the wide-scale use, linkage, analysis and integration of diverse datasets and the use of AI and big data analyses. These issues include how to obtain informed consent in a rapidly-changing environment; growing expectations that people should know how their data is being used; increased legal and regulatory requirements for the management of secondary use of data in biobanks and other medical research infrastructure. The concept has been developed in 2007 by an Italian group who introduced the concept of an ongoing process between researcher and participant where "technology now allows the establishment of dynamic participant–researcher partnerships." Dynamic Consent therefore describes a personalised, digital interface that enables two-way communication between participants and researchers and is a practical example of how software can be developed to give research participants greater understanding and control over how their data is used. It also enables clinical trial managers, researchers and clinicians to know what type of consent is attached to the use of data they hold and to have an easy way to seek a new consent if the use of the data changes. It is able to support greater accountability and transparency, streamlining consent processes to enable compliance with regulatory requirements. (en)
prov:wasDerivedFrom	wikipedia-en:Dynamic_consent?oldid=1124912494&ns=0
page length (characters) of wiki page	33161 (xsd:nonNegativeInteger)
foaf:isPrimaryTopicOf	wikipedia-en:Dynamic_consent
is Link from a Wikipage to another Wikipage of	Big data ethics Informed consent Biobank Information privacy
is foaf:primaryTopic of	wikipedia-en:Dynamic_consent

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